You will find normal again, you are not alone! Dealing with grief and children in the hospital

11/20/2016 12:00 pm · 184 comments

by Sarah A Thrifty Mom

A letter I wrote a few weeks ago for my friend… but finally had the courage to share it. I hope its message can not only help her family, but many others! You will find normal again, you are not alone!

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You will find normal again, you are not alone!

We all know the saying you never know someone till you have walked in their shoes?  I don’t think any of us can 100% understand what someone is going through because we are all so different. But you can at least have a better understanding of what it is like when you have had similar experiences.

This morning I woke up and saw a Go Fund Me account set up for a family friend. My Mom and several  people from our town had shared it. My heart sank, I saw a photo of her sweet lil baby girl.  I then found out that she had fallen into the camp fire and been life flighted to a burn center.  This was awful, but at least the burns were on her arms and chest, not her whole body.  But I also understand how traumatic and critical burns can be. Clearly she is a very sick little girl, and has a long road ahead of her. Likely years of healing and therapy will be needed.

I got the kids ready for school, yet in the back of my mind still feeling a bit sick knowing someone you care about is hurting.  We said our family prayers to get the kids off to school,  I asked my Father in Heaven to please be with this little girl. But also to be with her parents, and grandparents.  Asking that they will have the strength to care of her.  Being in the hospital with a critically ill child, is honestly one of the hardest things you will ever do. I know because  I have been there.

“In an empty hospital room, numb, confused and heart broken”

My oldest son was born missing half his heart. When the doctor delivered that news to us about 12 hours after my son was born, my whole life changed.  Life changing decisions were made within a matter of minutes my son and husband left on a life flight to Seattle in an attempt to try and save his life.  I was left there in an empty hospital room, numb, confused and heart broken. How did this even happen, and how was life ever going to be normal again?

The tears seemed endless, and as kind as the nurses and staff had been, I felt so alone. My Mom was there with me, yet I still felt so empty.  I really wanted to just go to sleep and wake up and find out all of this was a bad dream.  This is not how my life was suppose to go? I was suppose to be bringing my baby home and starting my new life as a mother. Instead I was laying in an empty hospital room, looking at the empty car seat that I had brought with me the day before. The car seat that was suppose to bring my baby home.

“Constant Praying”

I prayed a lot, almost constant. Praying and crying was about the only thing I felt like I could do.  At that point they only gave my son about a 30% chance of living through his first surgery. I had just gotten word from my husband that they did not even think he was a candidate for surgery, he would most likely die on the operating table.  My baby was going to die? Those are words no mothers should ever have to hear. I was not even there to hold him, I could not fly out till the next day. I never really understood heartache till that day. Like I said before, my life changed forever on that day.

“To say I felt hopeless was an understatement”

I was worried about my son, but I was also worried about myself. How was I going to do this? How was I going to pay for his surgeries? Where was I going to stay?  How was I going to pay for food and travel?  Would I be able to learn to care for him if he did live?  How was I going to give him all his medications? Would I be able to learn all the medical terms?  Am I going to loosing my baby?  HOW WAS I EVER GOING TO DO THIS? To say I felt hopeless was an understatement.

As I lay looking at the window, tears running down my face,  I was turned away from my Mom so she could not see me crying. I heard the phone ring, my Mom answered it for me.  Still looking out the window I did not turn over, instead I just listened. I heard my Mom say, “She is doing ok, she is just really scared and wants to get to her baby.”  My Mom then tipped the phone down and said, “Sarah, it is Aunt Susan she wanted to let you know she loves you and that she knows how scared you must be right now, and she is praying for you.”

“She was the first of many people that gave me the courage to keep going”

Once again the tears started flowing down my face, but this time it was a little different. You see my Aunt Susan had lost her baby minutes after giving birth about 20 years before. I had always heard the story, and thought how sad that must have been. Yet I never understood it, I had never felt those feeling because I had not lived through that same experience.  That phone call brought me so much strength, it was if she had reached through the phone and given me a hug. I was still terrified and scared. Yet I felt such love from her, she had been there before, she knew what I was feeling. She helped me feel safe, and that I could get through this.  I had not lost my baby yet, but if I did I knew that she was one of the few people that understood my heartache. She was the first of many people that gave me the courage to keep going.

“Outpouring of Love”

Over the next few years I saw an outpouring of love from friends, family and even total strangers. Money to help pay for flights, rides to the airport, meals, cards filled with encouragement, strangers who let us borrow their car while we were out of state at distant hospitals.  People coming to sit with me so I was not alone, since we were in the hospital for weeks at a time. It was a long and often lonely journey.  Everyone else was moving right along with their lives. Yet mine seemed to be moving in slow motion and it seemed my “normal life” was only a memory.

One of the things that gave me the most hope was seeing other heart families that had made it, or other parents that had sick kids that were now well.  I knew they understood what I was feeling, the heartache that seemed to consume me, they had felt it too.  But here they were a few years later with smiles on their faces, going to school, having family dinner around the table (instead of in a hospital room). They were planning vacations, they were going to church, going to the movies, or just going to work everyday…  they were just living normal lives.  And that gave me more hope than anything.

“Not just for your little one, but for YOU”

So as I sit here, I want to tell my friend who’s lil girl is in the burn unit right now… my heart aches for you.  My prayers have been constant for you today and will continue to be offered in your behalf. Not just for your little one, but for YOU.  I pray that you can feel them, I pray that you have the strength it takes to watch your little one hurt, and know that there is nothing you can do to make it stop.  You never understand how much you love someone until they are hurting and you can’t fix it.

Your journey is not going to be easy, there are going to be days you are going to want to give up. You will feel anger, sadness, confusion,  joy, hope and even total emptiness during this journey. But you will find joy again, and it will be more meaningful than ever!    I can also tell you, you will find normal again someday.

Our stories are different, but I hope you can find comfort in me telling you. You are not alone, you can do it, you are loved… and with time you will be able to smile again!


Watch my recorded video on answering your questions and telling my sons story

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Leave a Comment: 184 comments

Filed Under: Heart Stories, I'm a Heart Mom

184 comments
Suzie Moyer Ferrel
Suzie Moyer Ferrel

Thank you for sharing your amazing story - I work with learning support children K-2

Erin Mock
Erin Mock

What a positive and happy young man!!!

Linda Rizzo Kinnear
Linda Rizzo Kinnear

I feel that your son has the best mom ever. I know your pain, my daughter passed away from a brain tumor. We find the strength to be there for them. Treasure him, hug him often.

Linda Rizzo Kinnear
Linda Rizzo Kinnear

A Thrifty Mom thank you. Cherish your sweet son. You are so sweet. Happy Thanksgiving! I so love watching you videos, always makes me smile.

Teresa Shewell
Teresa Shewell

Blog special! Sarah and her perfections\U0001f606\U0001f618 (not imperfections)

Teresa Shewell
Teresa Shewell

I'm so impressed with your story. 👍🏻 I love hearing others stories❤️

Teresa Shewell
Teresa Shewell

Thanksgiving is for being grateful. Sounds like you are so grateful and thankful for every moment, even the crazy ones❤️🤗😘

Lori Wilson
Lori Wilson

Amen \U0001f64f God is good all the time

Stephanie Woolf Thurman
Stephanie Woolf Thurman

Oh my goodness you are an amazing lady! I love your videos and your fun quirky personality. And now I love you even more knowing how much you've been through and love your faithfulness and strength. Thank you for always being yourself.

Teresa Shewell
Teresa Shewell

We had an angel in our neighborhood who was born with heart defects. He made it to 5 before he had a heart transplant. He unfortunately only made it 6 months with the new heart. It was one of the most heart wrenching but spiritual things I've ever witnessed

Teresa Shewell
Teresa Shewell

Those are miracles in the purest sense. You're amazing to tell this story and share your personal testimony.

Teresa Shewell
Teresa Shewell

I wish more moms and dads could hear this story. Many take for granted their whole, healthy children.

Patricia Hoffer
Patricia Hoffer

My child has a friend with Down syndrome my child austim they have came best friends

Patricia Hoffer
Patricia Hoffer

Spin two mouth in Childens hospital with my child with her lost weight with blood bowels end up with epilepsy everything prayers ever time she is special needs to cry a lot to think about it

Wendy Griffiths-Dunmoyer
Wendy Griffiths-Dunmoyer

My daughter was born with a hole in her heart and we found out from a second doctor that it could have killed her. It was a miracle from God. Thank you for sharing your beautiful story.

Cassandra Potts
Cassandra Potts

I am a Mom to an Autistic Son so I know what its like to have a Special Child too!

Sue Crittenden
Sue Crittenden

\U0001f604. Have you read the poem Welcome to Holland?

Jenn Mcnaughton
Jenn Mcnaughton

I appreciate that you keep it clean. And I can watch w my kiddos

Sally Goddard
Sally Goddard

Omg, I never did notice that, until you showed it

Mell Gibbs
Mell Gibbs

I don't get it? I don't see why people talk about your eye brows i like them

Sally Goddard
Sally Goddard

You seem to be doing very well, and I live your brows, mine are wavked, & no I don't pluck them either, lol

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