What is a Mommy Moment, click here
A few months ago I shared a story with you about my oldest son Matthew. We were visiting family and I found him unresponsive in the middle of the night. After a night in the ER we were happy to have our little boy back to normal. But we had a long list of questions that no one had answers for. Thus started the long process of trying to dig a little deeper to make sure we were not missing anything, and try to prevent this from happening again.
It took us a few months of “red tape” but I finally got Matthew approved to have a 3 day EEG. This would help us track what his brain is doing in all environments, play, learning, eating, sleep. But this also meant he would have to wear leads for 3 days with no bath, and limited physical activities. I was really worried how these 3 days may go, but he rather enjoyed the extra time on the Wii, and playing games inside.
He looked rather sad with his head all wrapped up and toting his machine around. It reminded me of his pump we use to have to take everywhere for his tube feedings for 3 years. I was so proud of him, he is almost 11 but functions on many levels more like a 4-5 year old. I was worried it may be a 3 long days in melt down mode. But he was very calm, happy and seemed to understand that he needed to be a big boy so the Dr’s could help him. Being a parent to a child with special needs is not always easy. But it is moments like these that help me remember just how very blessed I am to have him healthy and out of the hospital. These little bumps in the road just make us stronger!