My Family

If you do not already follow us on Instagram we would love to have you, and share in the Moments We Want To Remember each week!moments I want to remember, cleaning moms purse
Mom I cleaned your purse out for you… There was a lot of junk in there. #LittleHelper #LittleStinker

moments I want to remember, baseball

He hit it on the first swing tonight… And got to play 3rd base and catcher. He sure has fun #specialNeedsBaseball #hypoplasticleftheartsyndrome

moments I want to remember, girls on the run 5kWe were up before the sun to get ready for the Girls On The Run 5k… Wish us luck :)

moments I want to remember, Matthew as a babyjpgFound this picture of my oldest son Matthew today. I had taken his feeding tube out for the day and wanted to get a photo without it strapped to his face. He was about 3 and very sick we were trying to get him strong enough for his the Fontain one if his major open heart Surgery. His face was swollen due to not getting enough blood flow his eyes always seemed wise and trying to tell his Mommy things would be ok. But I was always so worried about my sweet boy. Makes me realize how far we have come and how very blessed we are today. #heartMom #hypoplasticleftheartsyndrome #hlhs

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baseball teamI have talked about my oldest son Matthew before. He was born missing half his heart and has what is known as Hypoplastic Left Heart Syndrome. Yesterday was a pretty big day for him. It was his very first day on a real baseball team!  He joined a special needs baseball team and he has been so excited for his first game!

First let me take a second to explain why this is such a big deal for him. Matthew is delayed some, and also is physically  about half the size of most kids his age. Part of that is genetic the other part is due to having half a heart. While other kids were learning to walk, Matthew was just recovering from his two major open heart surgery (and a handful of other corrective surgeries in between). He was being tube fed and lacked the energy or muscle tone to do simple everyday things other kids his age were doing. There were moments when I wondered IF our lives were ever going to feel “normal”, if there would ever be weeks or months that did not involve hospital stays and doctors visits, or watching monitors.

In those days I just WISH I could have seen a tiny glimpse of the sweet, confident boy he has become.  It does not seem to bother him one bit that he is a little different.  He loves life and loves people.  Today as he played with his teammates Matthew just saw a group of friends that wanted to have fun and play a game.  He has the beautiful gift to see THEM, not their disability.

If you have never been to a special needs event…. you are missing out.  I do not think I have smiled so big in a long time.  These kids and coaches know how to enjoy life.

matthew baseball, special needs baseball team, team spirit

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If you do not already follow us on Instagram we would love to have you, and share in the Moments We Want To Remember each week!

moments I want to remember, self defence.

Scouts learning self defense tonight. You would never guess he only has half a heart by his outgoing, go get em’ personality. #hypoplasticleftheartsyndrome #HalfAHeart #loveHim

moments I want to remember,hoody towelClean baby in a dino towel = cuteness overload. Love her blue eyes #babygirl #bath #familymoments I want to remember, weird mom

She thinks her wierd Mom is hilarious #LoveHerGiggles #happybaby

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Easter 2015 eating peepsHope you all had a great Easter! We had such a great  weekend with both sides of our family. Lots of time running around in the grass, looking for pastel eggs and eating yummy food. Our baby girl even had her very first Peeps, which she gobbled down rather quickly,much to our surprise since she only has one tooth.

Easter 2015 little puppyWe even got to snuggle some of Grandma’s new puppies. Nothing says spring like flowers that have just bloomed, fresh cut grass and baby animals.  We hope you had a great weekend too!

Easter 2015 purple eggs

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If you do not already follow us on Instagram we would love to have you, and share in the Moments We Want To Remember each week!

moments I want to remember, no sleep puffy baby

Happy 10 month birthday, to this cute baby girl …. She celebrated by keeping me up most the night. You think her face looks puffy you should see minemoments I want to remember, captain america

This 5 year old thinks his Captian America mask from Granny is AWESOME #spring #birthdayGift

moments I want to remember, spring is hereEnjoying spring with this cute chunky monkey #babygirl #spring

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If you do not already follow us on Instagram we would love to have you, and share in the Moments We Want To Remember each week!

moments I want to remember, kiss the baby in the middle

Kisses for the hairy baby in the middle #LostHerClipAgain #BabyGirl

moments I want to remember, boys a chuckecheese

Thankful for great friends. These two sure have fun together #ChuckECheese #SillyBoysmoments I want to remember, spring baby

Watching her brother play basketball. We are SO happy spring is here #sunshine #ThoseCheeks

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