Mommy Moments 5/22

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mommy moment

What is a  Mommy Moment, click here

For those of you who have been reading my site for awhile, you know my son Matthew was born missing the whole left side of his heart.  He was born with Hypopastic Left Heart Syndrome  to read more about it view I’m a Heart Mom.  The trials we have faced getting him healthy have shaped me into the person I am today, and one of the main reasons I write my Mommy Moments post each week.

For the most part he is now a healthy 9 year old and the days of living in the hospital are but a memory.  I try to let him be as “normal” as possible.  But I will be honest I live on daily fear of what our next challenge may be.  This past month we did a routine EEG  since he has seizures.  The next morning I got a call from the neurologist office telling me they needed to speak with us immediately.  I asked what the concern was, and they just told me Matthew needed to be seen that same day.

At that point my mind was spinning with  every awful  thing they could tell me….. I thought oh no here we go again.  I have been down this road many times any normally it means a life flight and weeks in the hospital.   I was so sick I couldn’t eat, think or do anything for that matter.  It was all I could do just to get dressed, find a sitter for the kids and rush off to see the Doctor.  I found myself in constant prayer not just asking the lord to watch over my son…. but pleading with him to let everything be ok.

I was thinking about what I had planned for that day but none of it mattered.  The only thing that mattered was my baby boy and making sure he was ok.  We finally got to the Doctors,  the wait was killing me.  I played games on my phone with Matthew just to try and pass some time but inside I was a mess!  They finally went over his EEG results, they we abnormal as usual (but that is nothing new).  We had a great chat and found out there was really no rush for us to come in…. they just wanted to go over his results.  Part of me wanted to tell them they should never tell parents a child should be seen immediately ….. because holly cow they about sent me to the mental hospital.  BUT I was just so happy that he was ok I did not care, I just wanted to take my little boy home.

Once again I was reminded at what a priceless gift everyday is with him and I need to slow down and remember that.


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